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B Hackler Special user 778 Posts |
I am asking for prayer for my 7 week old son. He has a rare illness called GA1 and it is a pretty severe illness. Thanks for the prayers
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Kif Anderson FCM forum Staff 1961 - 2012 386 Posts |
Prayers being lifted up for your boy...and your family.
><> J
We are not cisterns made for hoarding, we are channels made for sharing. - Billy Graham
<BR> <BR>Sharing the gospel with Comedy & Illusion www.ozandwilde.com |
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B Hackler Special user 778 Posts |
Thanks me and my family really appreciate it.
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Dan Bernier Inner circle Canada 2298 Posts |
Praying for your son and family.
"If you're going to walk in the rain, don't complain about getting wet!"
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Rodney Palmer Inner circle 1317 Posts |
My wife and I will keep you in our prayers. What is your first name and your son's first name?
RJ
"Creating Memories That Last A Lifetime"
In order to keep "MAGIC ALIVE" Please become a Mentor to a Young Person. |
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Heres Tony Loyal user Orlando 259 Posts |
Praying for you now and I too would like to know his first name.
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B Hackler Special user 778 Posts |
Thanks for all of the prayers.
My sons name is Brandon and so is mine. |
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Rodney Palmer Inner circle 1317 Posts |
Thank You, Brandon!
I know that this is a very difficult time for you and your family but could you give us a little knowledge on what GA1 is? What type of disease is that? Rodney
"Creating Memories That Last A Lifetime"
In order to keep "MAGIC ALIVE" Please become a Mentor to a Young Person. |
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B Hackler Special user 778 Posts |
It is a Metabolic disease. My son cannot digest his formula because he does not have the acids to break it down. If the disease goes untreated it attacks the muscles. Our major concern is his heart. If he gets a temputure he has to go in the hospital an get a IV to bring the temp down. If the temp does not come down it could affect his brain. So anytime he has shots or is teething he will be hospitalized. This is the tip of the ice berg from what I have been told about the disease. And here is the bad thing I live in KY and this is the first case that KY has seen so his doctor is learning about the disease and treating the disease as we go. Thanks for all of the prayers me and my family really appreciate it.
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mralincoln Loyal user If I wasn't so busy, I'd have more than 220 Posts |
Brandon--
I am so sorry to hear about your son and his disorder. I will share this with my wife. We understand the difficulties facing you as a parent of a child with a rare disease. You and your family will be in our prayers!!! |
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mr.nemo New user 62 Posts |
So sorry to hear this Brandon and I am praying for you and Brandon jr. right now may the kingdom of God fill your hearts and souls...
Pls keep us updated with the status thank you Remy |
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mralincoln Loyal user If I wasn't so busy, I'd have more than 220 Posts |
Yes, do please keep us up to date!
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magicoftomh Inner circle Cleveland, Ohio 3664 Posts |
You, your son Brandon and your family will be in my prayers.
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B Hackler Special user 778 Posts |
Thanks for all of the prayers. The first part of next month we will get some blood tests back so we will know then how severe this will be on him throughout his life. My son just came out of a week long stay in icu he is doing better but could use every prayer he can get. Thanks
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mralincoln Loyal user If I wasn't so busy, I'd have more than 220 Posts |
Great news that your son came out of ICU! You, your son, and your family will continue to be in my prayers!
Please let us know about the outcome of your son, Brandon's, blood test. |
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Kif Anderson FCM forum Staff 1961 - 2012 386 Posts |
Thanks for the praise report...prayers continuing...
We are not cisterns made for hoarding, we are channels made for sharing. - Billy Graham
<BR> <BR>Sharing the gospel with Comedy & Illusion www.ozandwilde.com |
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grunkle New user 6 Posts |
My prayers go out to your son Brandon, as well as yourself and your wife. Stand strong with one another and with God in this tome of tremendous difficulty.
God bless you all |
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tazzini-lloyd New user 2 Posts |
May our Lord bless you an keep you in His love. May you know His peace, presence and power as you trust Him.
With love and prayers David |
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MAGICBYTIM Special user Louisiana 531 Posts |
I just saw this and would like you to know that you and your family are in my prayers.
Keep us posted. |
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B Hackler Special user 778 Posts |
Thanks for all of the prayers. The blood test came back positive so it has been confimed that he has GA1. We will be taking my son to PA in the next few weeks for treatment. From what we have been told the hospital in PA is one of the best in the world on treating the disease. Please continue to pray for my son and strength for me and my wife.
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